Monday, December 1, 2014

Epilepsy Awareness Month Recap

I thought I was going to take a break from blogging for a day or two after a month of posts but I can’t stop!

Okay, this will be short and there won’t be 30 minutes of video to watch (“Phew!” says Other Brother, who hasn’t quite caught up yet).

When I set out to do this video project, I wasn’t confident I could do one for every day.  I wanted to but wasn’t sure if I could pull it off (hence, all the disclaimers in the first post).  It is important to me to do something every November in support of Epilepsy Awareness Month and creating the videos seemed to be the most personal way I could explain the impact of epilepsy.  

In a third of people with epilepsy, seizures are uncontrolled.  Robert is part of this group and these are the people I want to focus on. As this group ages, what are the consequences of all those uncontrolled seizures, head trauma, medications and surgeries?

Robert is just one example of what can happen when seizures remain uncontrolled.  My focus on this is not meant to scare people who have uncontrolled epilepsy but just the opposite: Let’s focus on these difficult to control cases so we can raise awareness about what epilepsy does to a person over a lifetime. Let’s raise some money so research can be done on this group.

Let’s not forget about these people.

Let’s find a cure.

Let’s not give up.

Robert has not given up – not in the slightest.  He prays every day for his seizures to stop. Robert truly believes his seizures are getting fewer and he has hope and faith every day.

Every. Single. Day.

If Robert can have hope every day, if Robert can get up every day and be positive in spite of his legs not working as well as they used to or his labored breathing making it tough to talk sometimes then I can post a video every day for Epilepsy Awareness Month.

The links to each post are below. Please let me know if you have any more questions for Robert or about epilepsy and I will be happy to post a follow up video.

After all, I don’t want my camera to get rusty!

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