Wednesday, November 5, 2014

Epilepsy Awareness Month Day 5: Talking About Medications

It amazes me how much medication Robert is on for his epilepsy and other disorders, yet he still is in the thirty percent of those with epilepsy without good seizure control.

Robert's weekly meds fill up two of these containers
I cannot even imagine what his life would be like if he was not taking any of this medication. He takes 35 pills spread out over seven dispense times in one day.

That is a lot of medication.

Although the medication may not give him total seizure control, we know that it does help significantly and I am convinced he would have non-stop seizures without it. 

In this video, Robert and I go through each of his medications and what they help with.  Every person with epilepsy is different and what works for one person, may not work for another. It is a trial and error of finding the balance between seizure control while maintaining a great quality of life. 

I think as far as Robert is concerned, he has a pretty good life even though he still has seizures and still experiences side-effects (such as some drowsiness) from the medications.

What am I saying? I am convinced Robert thinks he has an “excellent” life in spite of the meds and seizures.

Please share in the comment section what trade-offs you experience with your medications or those you give to your caree.


Leslie said...

I have a lot of memory problems and depression because of my seizures. Right now I have good control after trying a new med, but we know this will not last forever. Then we will be on the hunt again. The doctor is discussing taking me off one of my meds, but I'm frankly scared to do so, as the combo I'm on now may be what's needed. OTOH, my blood level of this med is currently toxic.

I don't know what to do, frankly.

Trish Hughes Kreis said...

Oh, Leslie! What a tough decision. I understand your frustration and fear. I am always fearful of changing Robert's meds because of the problems it can cause. I'm glad the new med is giving you some good seizure control. I hope it lasts as long as possible!

You are always in my thoughts. Take care.