Robert's Sister

Caregiver to two now! Navigating the aftermath of my husband, Richard, surviving a "widow maker" heart attack. Advocating for my disabled brother, Robert, who has intractable epilepsy and declares everything excellent. Witness of miracles. Co-author of the 365 Caregiving Tips: Practical Tips from Everyday Caregivers book series and author of Forever a Caregiver. Full-time Legal Administrator and, oh, I had a stroke a few years ago. Writing to help other caregivers. Grateful for all of it.

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Articles

Making Technology Simple, Today's Caregiver Newsletter, June 30, 2011


Finding Support for Hereditary Neuropathy, Caregiver.com, CMT Channel


The Decision, Fearless Caregiver Newsletter, April 5, 2011


When a Loved One Needs a Skilled Nursing Facility, Today's Caregiver, July/August 2009, Caregiver Newsletter, September 2, 2009
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Books for the Caregiver

  • Amazon
  • Lulu

365 Caregiving Tips: Practical Tips From Everyday Caregivers

Forever a Caregiver, by Trish Hughes Kreis

Tell Your Story

Do you want to tell your caregiving or epilepsy story? I would love to talk to you! Email me at robertssister@att.net and I will publish an interview with you. Telling our own story helps others while also helping ourselves. I look forward to hearing from you! Trish
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Epilepsy Facts and Resources

  • 2012: Epilepsy Resources and Facts
  • 2015: 30 Epilepsy Facts
  • Dental Implications of Epilepsy: Courtesy of Epilepsy Association of Calgary
  • First Aid for Seizures: Complex Partial Seizures Courtesy of Epilepsy Foundation of Greater Los Angeles
  • First Aid for Seizures: Tonic Clonic Seizures Courtesy of Epilepsy Foundation of Greater Los Angeles

Tools to Help Find the Right Care Facility

  • California Advocates for Nursing Home Reform
  • Questionnaire - PDF to help the search

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Tweets by @robertssister1

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Popular Posts

  • Epilepsy Awareness Month: Advocating for Awareness and Answers - Interview with CURE
    November is Epilepsy Awareness Month! While I try to advocate and spread awareness and education year-round, it is always exciting to give a...
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    The connection between blows to the head (even those not resulting in a concussion) and Chronic Traumatic Encephalopathy (CTE) is clear tha...
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    Now that work is back to the “usual busy” instead of the “I’m losing my mind busy,” I am catching up on the non-urgent appointments for Rob...

About Me

Trish Hughes Kreis
View my complete profile

Resources

  • 365 Caregiving Tips
  • Alta California Regional Center
  • American Heart Association
  • California Dept of Health Care Services (Medi-Cal information)
  • Caring 4 Our Kids
  • Chelsea Hutchison Foundation
  • Epilepsy Foundation
  • Medicare
  • National Family Caregivers Association
  • Nursing Homes Abuse
  • Senior Living FAQ
  • Sudden Cardiac Arrest Foundation
  • The Family Caregiver Alliance
  • Today's Caregiver
  • U.S. Social Security Administration

Links

  • Ableize -- has disability and mobility covered
  • Blog Catalog

My Blog List

  • A Day in The Life...
  • Inspired Art and Living with Fiona Stolze
  • Living with a Thief named Lewy Body Dementia
  • PickYourPain.org
  • SandwichINK for the Sandwich Generation
  • Steve's a Pain
  • The Intentional Caregiver
  • The Purple Jacket
  • Thoughts From A Broad
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Contact Info

Trish Hughes Kreis

robertssister@att.net

Robert's Sister

Caregiving. Family. Advocacy.
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