It’s hard to believe Epilepsy Awareness Month is almost over. I am so grateful to everyone who agreed to be interviewed this month about epilepsy and sharing so much of their lives with such candor and openness.
I’d like to share some facts about epilepsy today and tomorrow I will
share some epilepsy resources that I hope are helpful.
First the facts, Ma’am:
• Almost 3 million
people living in the United States and 65 million worldwide live with epilepsy.
Source: Epilepsy Foundation
• 500 new cases of
epilepsy are diagnosed in the United States every day. Source:
CURE: Citizens United for Research in Epilepsy
• Epilepsy is the 4th
most common neurological disorder behind migraine, Alzheimer’s Disease and Stroke. Source: Epilepsy Foundation
• Epilepsy affects
more people than multiple sclerosis, cerebral palsy, muscular dystrophy, and
Parkinson’s disease combined. (Yes,
COMBINED!) Source: CURE: Citizens United for Research in Epilepsy
• It is a MYTH that a
person can swallow their tongue during a seizure. Nothing should be placed in a person’s mouth
during a seizure. The best way to help a
person having a seizure (if they are lying down) is to help keep them safe. If possible, roll them over to their side and
place something soft under their head.
Source: Epilepsy Foundation
• Epilepsy results in
an estimated annual cost of $15.5 billion in medical costs and lost or reduced
earnings and production. Source: CURE: Citizens United for Research in Epilepsy
• Epilepsy can develop
at any age and can be a result of genetics, stroke, head injury and many other
factors. Source: Epilepsy Foundation
• One study suggests
68% of people with poorly controlled epilepsy do not have personal
friends. Personal friendships help
develop good self-esteem which reduces depression. Source: Epilepsy Foundation
• Mood disorders are
related to epilepsy and can be a side effect of either the seizures or the
anti-seizure medication. Source: The Epilepsy Therapy Project
• In over 40% percent
of patients, seizures can’t be controlled with treatment which can lead to
brain damage and death. Source: Cure: Citizens United for Research in Epilepsy
• In almost 70% of
cases of epilepsy, no cause can be found.
So many conditions can cause epilepsy or are related to epilepsy that
it’s difficult to track down the exact cause.
It can be caused by an abnormality in brain wiring, imbalance of brain
chemistry, injury, poisoning, brain tumor, stroke, Alzheimer’s, cerebral palsy,
or any combination of these (just to name a few). Source: Epilepsy Foundation
• Keeping a seizure
diary can help someone with epilepsy and their neurologist figure out possible
seizure triggers and what medications are or aren’t working. Download a seizure diary at www.epilepsy.com.
If you’re interested in telling your own story about epilepsy, please contact me at firstname.lastname@example.org I’ll be happy to share your story at any time. After all, Epilepsy Awareness Month actually never ends!
Tomorrow I will share epilepsy resources with you to finish this month
of Epilepsy Awareness.
Then, I’m going to say hi to my husband, pet my animals and go take a