Saturday, March 3, 2012

Epilepsy Q&A: Call for Questions

We've been in the routine of having Robert over to our house most every weekend.  We enjoy having Robert here and he loves being here with us and the animals.  Robert looks forward to coming over on the weekends and even though I tell him each weekend, "I'll pick you up next weekend to come back over" he calls me every Friday to ask if he's coming over and at what time.  Lately, the calls have been coming earlier and earlier in the day – I think he likes coming over!  (My guess is it's the never-ending supply of Rocky Road Ice Cream).  :-)

Robert has always wanted to educate people about epilepsy.  I've become sort of his “PR” person in this regard since he can't use the computer and his ability to communicate is much slower now.  Lately, I've been asked a few questions about his seizures and about epilepsy in general so I will write a Q&A blog post this weekend and want to invite you to let me know if you have any questions Robert or I could answer.  Since he's here (and right now pretty full from spaghetti & ice cream), I'll ask him anything you'd like and I'll post the answers sometime on Sunday (barring any unexpected emergencies). 

As a disclaimer, we're not medical professionals or experts in the field of epilepsy.  We're just people who have lived with it (Robert) or witnessed it (me) our entire lives.  If I don't know an answer, I'll do my best to research the answer. 

My only rule: Don't be afraid to ask questions!  Robert and I want to answer anything you've ever wondered about epilepsy or seizures so please don’t be afraid of offending us.  Also, remember that no question is stupid.  Ask away!

Robert and I look forward to your questions.


Anonymous said...

Thank you for this opportunity. It feels like I am asking extremely personal questions, so thank you for your openness,

What does it feel like when you have a seizure? Does it hurt? Can you hear or see what's going on around you?


Heidi Alberti & Atticus Uncensored said...

Great idea for you & Robert to collaborate on answers, Trish! I think my automatic question was already asked by Julia. I'm curious to learn the answer...

Aside from Robert's epilepsy, how does he feel he's treated as a "disabled" person? Does he sense if others view him differently? If someone is cruel, does Robert meet that with humor, anger, confusion...?

Thank you for this opportunity. Hi to hubby, Robert, kids & pets! & doggy kisses for you, Trish :)

Heidi & Atticus
"commentary to give you paws..."