Saturday, February 13, 2010

Oops -- My Bad

Rob called me about ten minutes after I had woken up this morning. Pretty good timing, considering he could have called when he wakes up (5:30 a.m. or so). Fifteen minutes before 7:00 didn’t seem too bad even though it was the weekend. I was still a little groggy and in the middle of the morning routine of feeding dogs, cats and the turtle but cleared my head when I saw it was Robert calling.

I try to guess why Robert is calling before actually answering to get a head start on preparing myself for whatever it might be. It’s a habit a control freak like me can’t seem to break. What in the world did we (“we” as in me and the other control freaks) do before caller id?

My mind runs through a few scenarios but the first is always: “This is the nurse. We heard a crash and came in. Robert needs to go the hospital.” Then I stop being such a drama queen and move on to more mundane reasons for the call such as “Do you want to come over to play cards?” or “I’m out of toothpaste” or “My remote doesn’t work.”

Just answer the phone already!

Saturday, February 6, 2010

Can I Interest You in a Subscription?

If you looked at Robert’s magazine subscriptions before moving into the Care Facility you would think he was an athletic Mr. Fix-It who gardens after a long day of hunting and, in his spare time, collects guns and rare coins while harboring a soft spot for celebrity gossip and an interest in architecture.

The truth is Robert is a developmentally disabled, physically challenged, devout Christian epileptic who enjoys playing cards and bingo, going to church, watching game shows and spending hours on end working on word search puzzles.

He collects magazines; he doesn’t read them.

Saturday, January 30, 2010

The Decision

The decision to place Robert in an assisted living facility was not an easy one. It isn’t easy for anyone but, to be honest, it was not only gut-wrenching but I was pretty hard headed about it. Denial is a highly regarded trait in my family and I wasn’t about to give it up now.

Before moving Rob to his Care Facility, Robert lived in a town 90 minutes away from me. He lived with Judy who is several years older than Rob and also suffers from epilepsy. They have been together for twenty years or so although Rob actually tells people they have been together for 35 years. That puts him at, um, age nine when they got together. It’s quite amusing to watch the listener puzzle through the math once Rob says this but I know how important it is to Rob to think he knows how long he and Judy have been together so I usually let the listener remain puzzled, and eventually, slightly alarmed.

Rob and Judy talked about marriage for many years but both would lose some government assistance if they married. They are very religious which made the decision for them not to marry all the more disheartening for them. They purchased rings anyway, lived together, cared for one another, went to church together but, ultimately, never married.

Rob’s mental ability declined over the years due to the seizures, brain surgeries and head injuries and Judy’s has never been much better. Despite these obstacles, they took care of their household, walked to the grocery store together, somehow got to doctor appointments and church on their own and managed their medications by themselves.

Thursday, January 7, 2010

Dry by Morning

I’m warning you right now. Read no further if you don’t like discussions of bodily fluids or messy diapers. Hey, sometimes people needing assisted living or extra care (the elderly, the disabled) have bathroom problems and while it may not be glamorous it is a part of their (and us caregivers’) existence. If you have a weak stomach, recently ate or just don’t have a desire to read about urine (or worse), then please stop reading and come back another day. You’ve been warned.

Lots of people use “protective underwear” (aka, diapers for adults). Incontinence is a huge problem for many people whether it is an ongoing disability, a temporary health problem, age-related or something else. Anyone who has shopped in a drugstore knows there is a large amount of space dedicated to “protective underwear.”