tag:blogger.com,1999:blog-3821611713908924761.post806127909012169985..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: Merry Christmas from Robert's Sister!Trish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3821611713908924761.post-83158941118775277922011-12-26T11:56:10.091-08:002011-12-26T11:56:10.091-08:00Bill, I so appreciate your comments and encouragin...Bill, I so appreciate your comments and encouraging me to post more in Austin's Bloggers. I don't always post in the group (sometimes I get busy and other times I wonder if the post would have universal appeal). I'll be sure to post more in 2012. I have to be more patient too -- I understand how frustrating it is to repeat things over and over. Robert is also somewhat OCD and HAS to do things in a certain order -- no amount of pleading frome me will get him to hurry his routine tasks (even if a doctor appt looms). I wish the best for you and Jon and am happy we found each other so we can share caregiving stories as well as support when the seizures hit. Have a wonderful day and wish Jon the best too. (Hugs to Roxy & Charlie, too!).Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-12158720820748119682011-12-26T11:24:30.987-08:002011-12-26T11:24:30.987-08:00Another wonderful post, Trish. You make us all fe...Another wonderful post, Trish. You make us all feel like members of your family.<br />Over time, I feel like I know and understand Robert so well. I would love to shake his hand one day. His struggles are an inspiration and your commitment to him is all the more remarkable because of the many other commitments you have. I am inspired by you both.<br />As you know, Jon has a seizure disorder which is quite severe. He has lost all of his short term memory so I have to repeat myself many many times before he can retain even simple information. He will often take something out of the freezer to defrost for dinner. Then, forgetting that he took something out, he will take out something else. If I don't watch it carefully, I end up having to cook several things at once so they don't spoil. That is just the tip of the iceberg, but I have learned to use postit notes all over the place to remind him to check with me before he does almost anything. It can be frustrating at times but I try to remember that he would help me (and does) if I need help. Patience is a virtue and I have learned to be patient over our many years together.<br />I would love for you to share your posts with Austin's Bloggers. It's up to you but I think the people who visit the group would love to know you and Robert. I have a number of published writers who don't blog but they read everything. There are also a lot of people who just like to read the posts.<br />Thanks,<br />Bill Austin HoweAnonymoushttps://www.blogger.com/profile/16650716511828167784noreply@blogger.com