tag:blogger.com,1999:blog-3821611713908924761.post6739925603963570653..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: Epilepsy: How Does it CompareTrish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3821611713908924761.post-83931274521637256012011-10-08T09:11:45.471-07:002011-10-08T09:11:45.471-07:00Judy, I'm sorry about your comment. The intern...Judy, I'm sorry about your comment. The internet is really helping to educate about epilepsy. Thank you for supporting the petition!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-5760244638505673632011-10-08T09:09:30.425-07:002011-10-08T09:09:30.425-07:00Fiona, I didn't know that your mom has epileps...Fiona, I didn't know that your mom has epilepsy and appreciate you sharing that here. I think once we get past the "scary" factor, more research money will be available. The only way I know how to get past that is through education. A slow but sure process! I always appreciate your support, Fiona.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-43298998897837368192011-10-05T10:46:03.004-07:002011-10-05T10:46:03.004-07:00I was really surprised at these figures Trish. Whe...I was really surprised at these figures Trish. When you put them into context they begin to really make sense (or not make sense, to be honest).<br /><br />I agree that epilepsy has this really scary factor to it but I'm sure it's just because people don't know how to react or deal with it.<br /><br />My mum suffers from a mild form of epilepsy (temporal lobal)and experiencing it is not scary when you are prepared.<br /><br />Sufficient funding for such large numbers would seem to be a very reasonable request. I hope that this gets the attention it deserves. xxxx<br /><br />Fiona Stolze<br />http://fionastolze.comFiona Stolzehttps://www.blogger.com/profile/00343231825594699539noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-5660311890532302912011-10-04T21:25:36.740-07:002011-10-04T21:25:36.740-07:00Oh dear, I wrote a long comment and it disappeared...Oh dear, I wrote a long comment and it disappeared after I tried to post. Basically I said that the numbers really surprised me, but I think with the Internet, it's a lot easier to get awareness out there now. Epilepsy is scary to people (seizures), and the history has negative images that create mistrust (the idea of "fits" and foaming at the mouth). Reeducation is a long process! You are part of that process.<br /><br />I'm going to take a look at the petition now. Let's see if I can get this to post this time.<br /><br />Judy Stone-Goldman<br />The Reflective Writer<br />http://www.thereflectivewriter.com/blog/<br />Personal-Professional Balance Through WritingJudy Stone-Goldmanhttp://www.thereflectivewriter.com/blog/noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-81361723081900310692011-10-04T20:39:15.678-07:002011-10-04T20:39:15.678-07:00June, What Michael J. Fox has done for Parkinson&#...June, What Michael J. Fox has done for Parkinson's research is nothing short of phenomenal. I don't want to take anything away from him or his efforts (I love the guy and admire everything he's doing -- he's using his celebrity for good!). What I'd like to do is raise more awareness about epilepsy to (1) reduce fear of it and (2) increase research. Thank you so much for supporting my efforts to do this!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-29608582191139608202011-10-04T20:35:22.002-07:002011-10-04T20:35:22.002-07:00I appreciate you signing the petition, Rita. I jus...I appreciate you signing the petition, Rita. I just think if there was more funding for research then the 30% of people with epilepsy whose seizures aren't controlled could be helped eventually. I really appreciate the support!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-78840237427630631162011-10-04T16:52:42.601-07:002011-10-04T16:52:42.601-07:00Yikes, more people need to know. I have a friend ...Yikes, more people need to know. I have a friend whose husband has epilepsy so I am familiiar, but as you said many are not...and it affects SO many! They sure do need help in spreading awareness....I will sign the petitions. They need more people like you...and a celebrity or two wouldn't hurt, lol! I think what you are doing is wonderful for ALL affected...and their families. It can be a scary time for all.<br /><br />Rita Brennan Freay<br />http://ritabrennanfreay.comRitahttps://www.blogger.com/profile/13241583458425194342noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-3086208262141537562011-10-04T11:47:23.843-07:002011-10-04T11:47:23.843-07:00I didn't realize epilepsy was such a small per...I didn't realize epilepsy was such a small percent. The funding for Parkinson's is much higher because actor Michael J. Fox has it and he's been very actively pushing for the money.Junebughttps://www.blogger.com/profile/11762718853624290436noreply@blogger.com