tag:blogger.com,1999:blog-3821611713908924761.post4725863853855578016..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: Epilepsy: What is it and Can I Catch It?Trish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3821611713908924761.post-44488215905498513292016-01-13T07:29:44.987-08:002016-01-13T07:29:44.987-08:00Hi, Rebecca,
Thank you for your kind comments abo...Hi, Rebecca,<br /><br />Thank you for your kind comments about my website. I am so sorry about your seizure storms and your stepson's epilepsy. Robert has been having seizure clusters and they are terribly frightening! Please let your partner know that she will be okay but will be scared every single time. I have witnessed hundreds of Robert's seizures and they still get to me! Please take care and keep reading. I did recently publish a new book about caregiving which might be helpful to your partner. It doesn't specifically address epilepsy but she might find some of the information helpful. I don't mean this to be a self-serving plug but I believe in this book and it was written by 5 caregivers in all different situations. <br /><br />Please keep in touch. Take care.<br /><br />TrishTrish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-80219316239901400772016-01-08T06:02:36.887-08:002016-01-08T06:02:36.887-08:00Hi & thank you for your webpage & great in...Hi & thank you for your webpage & great information. Appreciate the research but also your simple honesty about yours & Robert's journey. Please tell him I said hello & he is now my new hero. I have epilepsy & I can't imagine it uncontrolled. I mean they are a little now but I will probably be able to see fewer with meds. Actually I hadn't had one in about 8 years & then all the sudden I had 12 in about 40 minutes. I have seizure storms, grand mal's (which are the worst). Seizing & mentally gone for 30 minutes then very slowly beginning to become aware of who & what I am. Where I am. The storms suck. Little convulsive seizures for 30 seconds to 2 minutes. They wear me out. Feels like I've run a marathon cuz of the muscle contractions. I have broken the ball in my shoulder socket, popped out 2 teeth & given myself soft tissue damage on my brain. The love of my life just found out her 21 year old son has it & then mine reemerge after so long. She is so very scared after witnessing them for us to even go into the bathroom. But meds help with both mine & my stepson's. So it seems a matter of taking responsibility taking meds & acceptance that this is the hand that has been dealt. If you are able & can reach out to my partner because you both are affected by a loved one wit it. You know better than anyone what she is going through. My email is bekwinton@gmail.com. Best wishes...Anonymoushttps://www.blogger.com/profile/14416983335704564315noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-10542469149316083052011-09-25T14:44:30.707-07:002011-09-25T14:44:30.707-07:00Thank you for visiting! People don't know much...Thank you for visiting! People don't know much about epilepsy so sometimes it can feel like a lonely condition. My brother has been through a lot through his life and I hope others with epilepsy can relate. I'm happy you have a wonderful caregiver. I'm curious if you were diagnosed as a child and if you have you found medication that works for your seizures? I'd love to hear more of your story if you'd like to share. Take care.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-76320286354643013762011-09-24T18:12:58.404-07:002011-09-24T18:12:58.404-07:00I am 21, and I am an epileptic. The cause of my e...I am 21, and I am an epileptic. The cause of my epilepsy is also unknown, but my flatmate has been a wonderful caregiver. Thank you so much for spreading the word about epilepsy, and for being such an amazing caregiver yourself.Anonymousnoreply@blogger.com