tag:blogger.com,1999:blog-3821611713908924761.post4607008279445611455..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: Holding a Care Facility AccountableTrish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3821611713908924761.post-24281819704832547122011-10-04T20:41:32.620-07:002011-10-04T20:41:32.620-07:00Rita, You nailed what bugs me the most: their blas...Rita, You nailed what bugs me the most: their blase attitude! Goodness, let's act like you care, people! It's the upper management with the attitude problem. The people that are hands on with Robert and his roommates are great. I appreciate your support and can use all the hugs I can get! :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-31224705353957650122011-10-04T08:52:51.334-07:002011-10-04T08:52:51.334-07:00Wow, I am in awe....seriously. How you do it all ...Wow, I am in awe....seriously. How you do it all AND keep it together...simply amazing. It would help if all parties would make the meeting so you can be sure your on the same page, and I totally get needing to pick your battles, and not wanting Robert to suffer from your behavior...as ridiculous as that sounds it is reality...sadly!! Accountability goes somewhere...and you are doing MORE than your share...its time they did theirs. I find it horrible that they would just cut off tv, and the air not working...and be so blase about it...ugh. I hope you continue to be a PITA, as I am, and that you make lots of progress....fingers crossed!!! Sending hugs,<br /><br />Rita Brennan Freay<br />@Rita4kids<br />http://ritabrennanfreay.comRitahttps://www.blogger.com/profile/13241583458425194342noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-28901117433193739682011-10-04T07:50:50.770-07:002011-10-04T07:50:50.770-07:00Sherryl, Your comment made me laugh! ISP for Rober...Sherryl, Your comment made me laugh! ISP for Robert means Individualized Service Plan. :-) You hit the nail on the head - I do feel like I'm walking a tightrope between the ensuring Robert has good care and not making the home upset (which would affect Robert's care). It's a juggling act and I don't even know how to juggle!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-73465289327021164602011-10-04T07:40:58.606-07:002011-10-04T07:40:58.606-07:00Wow! I always thought an ISP was just an Internet ...Wow! I always thought an ISP was just an <i>Internet Service Provider</i>. :) Thankfully, I have't had to learn how to navigate the health care system yet. Robert is very lucky to have you as his advocate. It must be difficult at times to not alienate Robert's care givers while still seeing that his needs are fulfilled.Sherryl Perryhttp://keepupwiththeweb.comnoreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-70886033279292335532011-10-03T16:27:08.215-07:002011-10-03T16:27:08.215-07:00Thanks, Heidi! Being the squeaky wheel doesn't...Thanks, Heidi! Being the squeaky wheel doesn't come naturally to me but I'm definitely getting better at it. It's actually coming more natually the more experience I have with it! :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-64096002800615694482011-10-03T07:25:51.211-07:002011-10-03T07:25:51.211-07:00oh Trish, you know I'm a PITA too sometimes --...oh Trish, you know I'm a PITA too sometimes -- but with some situations (New House, health insurers, bad public policies, etc...) you Have to be the squeaky wheel to get the grease, so to speak. <br /><br />I totally admire that you are able to keep your cool (most of the time :) ) and carefully choose your battles. I tend to get overly emotional and Really have to put a lot of effort into remaining calm. (while internally I am screaming at the ineptitude, cover-ups and stupid bureaucracy!)<br /><br />Kudos to you Trish!<br /><br />Heidi & Atticus<br />http://www.atticusuncensored.com<br />"commentary to give you paws..."Heidi Alberti & Atticus Uncensoredhttps://www.blogger.com/profile/05235433621038051444noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-68884261780601151382011-10-02T10:32:30.869-07:002011-10-02T10:32:30.869-07:00I don't know how amazing I am but I appreciate...I don't know how amazing I am but I appreciate your support. I really think anyone would do what they can for a loved one (and see many that do).Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-12654435393797697772011-09-29T12:13:31.439-07:002011-09-29T12:13:31.439-07:00You amaze me. I know well how frustrating being a ...You amaze me. I know well how frustrating being a caregiver can be. You handle it better than most. Like I said, you amaze me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-19021620978667320502011-09-28T16:32:50.543-07:002011-09-28T16:32:50.543-07:00Fiona, Wouldn't it be great if everyone just w...Fiona, Wouldn't it be great if everyone just would communicate directly and honestly? It's difficult to believe Robert is being well cared for when I know people are being less than honest. Robert is definitely a creature of habit and routine and, usually, wants to do things on his own so his morning routine takes a while. :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-28641667302032455412011-09-28T11:38:29.932-07:002011-09-28T11:38:29.932-07:00What a job, having to navigate these meetings with...What a job, having to navigate these meetings without exploding in anyone's face Trish. And it's hard when, as you say, you don't want to mess things up for Robert. <br /><br />When you wrote that Robert needs 2 1/2 hours to get ready in the mornings, that really put it into perspective for me. Doing these negotiations you so need everyone to be totally honest. It's so hard when you know that the other person is choosing not to be as truthful as they could. It doesn't make anything at all easier and justs ends up wasting time and patience. Straight forward communication is the way I prefer it myself.<br /><br />Picking and choosing your battles is a very wise decision, Trish. Life is a dance. x<br /><br />Fiona Stolze<br />Inspired Art and Living<br />http://fionastolze.comFiona Stolzehttps://www.blogger.com/profile/00343231825594699539noreply@blogger.com