tag:blogger.com,1999:blog-3821611713908924761.post4156045063422214154..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: Finding Comfort Even on the Bad DaysTrish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-3821611713908924761.post-11766349144924602412012-03-29T07:12:52.114-07:002012-03-29T07:12:52.114-07:00Julieanne, Yes, it is so comforting to know I can ...Julieanne, Yes, it is so comforting to know I can rely on them without worry - through Robert's good days, seizure days and bad behavior days! I'm thrilled to have him at this program.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-19807456258307338902012-03-27T19:33:32.037-07:002012-03-27T19:33:32.037-07:00How wonderful to have caring, knowledgeable and un...How wonderful to have caring, knowledgeable and understanding care givers at this facility! So wonderful to know that there are some of those out there!<br /><br /><br /><br />Julieanne Case<br />Always from the heart!<br /><br />Reconnecting you to your Original Blueprint, Your Essence, Your Joy| Healing you from the Inside Out |Reconnective Healing | The Reconnection| Reconnective Art |<br /><br />http://thereconnectivehighway.comJulieannehttps://www.blogger.com/profile/01045916494191370033noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-55974828531584399112012-03-25T09:10:24.177-07:002012-03-25T09:10:24.177-07:00It is such a relief to know Robert is in good hand...It is such a relief to know Robert is in good hands at his day program. The director does an excellent job of hiring good, caring people and she is very hands on herself. You're right about needing to understand the "fluctuations in skills" with individuals. Robert is certainly not perfect and can act out (as happened here). It brings me great comfort to know he can do that and his day program will be understanding and knowledgeable about how to handle it. <br /><br />(The weekend away was wonderful, by the way!).Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-58782776064257396112012-03-24T21:41:12.443-07:002012-03-24T21:41:12.443-07:00How wonderful to have people with Robert who actua...How wonderful to have people with Robert who actually know how to problem solve, help people cope, and set reasonable expectations (with room for forgiveness). One of the most upsetting things to me is seeing caregivers (or teachers or anybody in a position of power and authority) react inappropriately to the inevitable fluctuations in skills that individuals needing care will show.<br /><br />I'm really glad you and your husband gave yourself the gift of a weekend together. Robert is not perfect (of course none of us are!) and he's going to have days that are not his best. You can't protect him from that, or the consequences. But you've done so well making sure he has supportive people around him.<br /><br />Judy Stone-Goldman<br />The Reflective Writer<br />http://www.thereflectivewriter.com<br />Personal-Professional Balance Through WritingJudy, The Reflective Writerhttps://www.blogger.com/profile/12155041904319269319noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-57220280384568720352012-03-23T07:05:41.696-07:002012-03-23T07:05:41.696-07:00Imogen, You really hit on something that is import...Imogen, You really hit on something that is important to me: they involve me in Robert's care and want that. That has been the problem with the facility where he lives - they aren't used to family involvement and made it clear from the start they didn't want it. Knowing his Day Program keeps me in the loop is a huge relief.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-57913674926249109272012-03-23T07:02:55.847-07:002012-03-23T07:02:55.847-07:00Sherryl, Robert couldn't be in a better Day Pr...Sherryl, Robert couldn't be in a better Day Program. It really is comforting to know that he is in good hands during the day (still working on his care facility but even that has improved). It was nice to get away. There's always a tinge of guilt but I know it's important and my husband I do feel refreshed again.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-56165745671292746162012-03-22T08:15:38.809-07:002012-03-22T08:15:38.809-07:00It does sound like Robert has found a new home tha...It does sound like Robert has found a new home that fits well foor him. It's great that you have such a good relationship with the director. She sounds very caring. It sounds like Robert is being looked after. I hope you have (or had) a wonderful weekend with your husband. (You need to be pampered too!)keepupwebhttps://www.blogger.com/profile/11384920788165524049noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-43152718700759929382012-03-22T07:59:34.143-07:002012-03-22T07:59:34.143-07:00It sounds like you have Robert in a great place, a...It sounds like you have Robert in a great place, and the director of program sounds really understanding and supportive. And they want your involvement, which is a really good thing. We all have bad days sometimes, and Robert is no different...<br />I do hope you had a wonderful weekend away with your husband, and have come home refreshed!Imogen Ragonehttps://www.blogger.com/profile/11632650987331173672noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-16697275142669763042012-03-20T20:14:59.259-07:002012-03-20T20:14:59.259-07:00Dennis, The director is so wonderful. I think it r...Dennis, The director is so wonderful. I think it really helps because she has a special needs child and is always thinking about how she would like her child to be treated. Thanks for stopping by -- I know you've been so busy going global and everything. :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-12766643776480156362012-03-20T20:13:39.674-07:002012-03-20T20:13:39.674-07:00Thank you, Sandy. It's true we just may not kn...Thank you, Sandy. It's true we just may not know what is going on with someone else to explain their behavior (which may seem odd to us). Robert's Day Program is really terrific. Now if I only had such faith in his care facility! :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-44784471742910177472012-03-20T19:06:42.587-07:002012-03-20T19:06:42.587-07:00This was a great example of a difficult situation ...This was a great example of a difficult situation with an experienced caregiver...sounds like you really have Robert in the right place. This story is instructive in and of itself, but in a larger perspective, maybe we should all think before reacting to anyone's behavior...they may not think or be able to think as we do and it is easy to assume wrongly that they can and react without thinking...thank you for sharing! This has applications far beyond what you intended!Sandy Spurlockhttps://www.blogger.com/profile/14168453217510406914noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-2881480442559332942012-03-20T14:23:44.784-07:002012-03-20T14:23:44.784-07:00This is really great.. She seems like she's go...This is really great.. She seems like she's got the patience of a saint so kudos to her. I know a lot of people hate confrontation because it sounds so bad, but it's just conflict resolution. Robert understood and all is good.Anonymoushttps://www.blogger.com/profile/07878218624824766034noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-25229570031226474042012-03-17T16:09:14.963-07:002012-03-17T16:09:14.963-07:00Leslie, I certainly couldn't guarantee I'd...Leslie, I certainly couldn't guarantee I'd be any more patient either! Thankfully, the director handled the situation beautifully. I owe her!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-22280426155716607182012-03-16T14:42:27.172-07:002012-03-16T14:42:27.172-07:00Heh. I don't like incessant talking either (u...Heh. I don't like incessant talking either (unless I'm the one doing it) so incan fully sympathize with Robert.Leslie Hammernoreply@blogger.com