tag:blogger.com,1999:blog-3821611713908924761.post4046179764282309438..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: This is a SeizureTrish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3821611713908924761.post-57232387507238847712011-10-18T06:48:13.019-07:002011-10-18T06:48:13.019-07:00Thanks, Dennis. Robert has always wanted to educat...Thanks, Dennis. Robert has always wanted to educate people about epilepsy. I just consider myself his spokesperson. :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-41355940252168352702011-10-17T23:17:40.202-07:002011-10-17T23:17:40.202-07:00Thank you for allowing us the chance to see what y...Thank you for allowing us the chance to see what you and Robert go through day in and day out. Again, I commend you. But also Robert, for his bravery and willingness to share himself with so many people.Anonymoushttps://www.blogger.com/profile/07878218624824766034noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-37478096631997930242011-10-15T19:06:39.076-07:002011-10-15T19:06:39.076-07:00Judy, Thank you for your kind comments. The movies...Judy, Thank you for your kind comments. The movies definitely go for shock value so use the grand mal type to portray seizures. Robert's seizures have changed over the years (most likely due to his medication and surgeries). He had the grand mal type when he was in high school. It was a very difficult time for him but education about seizures has improved over the years. You're right about the internet helping that along!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-38940066681643671212011-10-15T18:31:15.785-07:002011-10-15T18:31:15.785-07:00As others say, this is different than what I might...As others say, this is different than what I might expect. I think grand mal seizures are the kind given the most publicity, especially in tv shows and movies, which might go for shock value.<br /><br />I commend both Robert and you for wanting to educate in this way. It sounds weird to say this, but the modern world with youtube and facebook and the Internet are perfect for carrying out this kind of education. When else could people share a video of this kind except in a formal documentary?<br /><br />I thought this blog was particularly sweet because although its primary purpose was quite serious (and you did a great job of explaining this and letting people know what they would see, should they choose to view it), you also kept your kind-hearted sense of humor woven in. (Dinner sounds delicious!)<br /><br />Judy Stone-Goldman<br />The Reflective Writer<br />http://www.thereflectivewriter.com/blog/<br />Personal-Professional Balance Through WritingJudy, The Reflective Writerhttps://www.blogger.com/profile/12155041904319269319noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-26036738754841425672011-10-15T14:11:25.291-07:002011-10-15T14:11:25.291-07:00Thanks, Kathy. Yes, Mandy & Robert are both ve...Thanks, Kathy. Yes, Mandy & Robert are both very courageous in their mission to educate about epilepsy and seizures. No injuries to us or our dinner plate! :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-74854262050062207092011-10-14T20:15:23.400-07:002011-10-14T20:15:23.400-07:00Wow what a brave young woman that girl is by shari...Wow what a brave young woman that girl is by sharing her video. It's very scary to just purposely put your life out there for all the world to see. <br /><br />And Robert, oh my! Thank you for allowing Trish to share your video and educate us! <br /><br />So grateful there were no injuries to either of you.Kathy Lowreyhttps://www.blogger.com/profile/08866920774643291297noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-38007611825150933402011-10-14T13:11:19.949-07:002011-10-14T13:11:19.949-07:00Joan, Robert's seizures aren't the tonic-c...Joan, Robert's seizures aren't the tonic-clonic (grand mal) seizures which many people picture when they think of a seizure. I wanted to show that seizures are not one size fits all. The response is the same: keep the person safe and do your best to save the tableware! :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-28503244772083353272011-10-14T11:16:15.562-07:002011-10-14T11:16:15.562-07:00Trish - this was so different from what I would ha...Trish - this was so different from what I would have expected. In my mind, a seizure is a violent thing, with thrashing and moaning. And that's the whole point, isn't it? That you are trying to educate people as to what a seizure really is. Good work - you're pretty amazing.Joan Oliver Emmerhttp://www.joanoliveremmer.comnoreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-17940916604287437652011-10-14T05:49:25.794-07:002011-10-14T05:49:25.794-07:00I'm with you in educating about epilepsy &...I'm with you in educating about epilepsy & seizures. The more people are exposed to them, the less freaked out people will be when they see one "in person." We definitely need more research in order to help the 30% who do not have seizure control with medications or through surgery. Thanks for visiting, Mandy!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-90184866990030036872011-10-13T23:19:49.758-07:002011-10-13T23:19:49.758-07:00Wow... it's such an amazing thing to catch a s...Wow... it's such an amazing thing to catch a seizure on camera. Not that they are good, but it's amazing to be able to show the world. And don't worry, God's not ignoring him... it's the world that can't seem to give us all the time of day and do more research!<br /><br />I will keep Robert in my heart and in my prayers each day. Miracles do happen and I believe in them 110%!<br /><br />Thanks for the shout out - God bless!<br /><br />- EpilepsyBloggerAnonymoushttps://www.blogger.com/profile/14757329026283457061noreply@blogger.com