tag:blogger.com,1999:blog-3821611713908924761.post1885740612908972221..comments2024-03-12T02:16:30.251-07:00Comments on Robert's Sister: The UnknownTrish Hughes Kreishttp://www.blogger.com/profile/04995070221130924508noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3821611713908924761.post-50799520587008372872011-06-22T17:00:56.245-07:002011-06-22T17:00:56.245-07:00Awww! Which is why you're my BFF. :-)Awww! Which is why you're my BFF. :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-8271252897989986732011-06-22T13:05:56.881-07:002011-06-22T13:05:56.881-07:00I can totally sew buttons on for you ;-)I can totally sew buttons on for you ;-)Clicking Frogshttps://www.blogger.com/profile/09203926249142869762noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-20164068008205402092011-06-22T06:25:37.747-07:002011-06-22T06:25:37.747-07:00Judy, Thank you for your kind words and meditation...Judy, Thank you for your kind words and meditations. I really appreciate your support. We will see what the neurologist says today and I even question whether or not my perspective is skewed since I'm so close to the situation. Maybe I think he's declining faster than what the actual tests show (although my other brother hadn't seen him in a while and noticed a decline, particularly with the walking). I'll post again after the appt to update everyone. Thanks again for everything.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-69437669114940793052011-06-21T20:04:00.415-07:002011-06-21T20:04:00.415-07:00Trish, I had no idea Robert's health was decli...Trish, I had no idea Robert's health was declining this way. So very difficult for you both. This is Tuesday, so I believe the appointment is tomorrow. I'm glad I read this before the appointment date so I can add my mental strength and meditation to what you learn.<br /><br />You are quite amazing with your courage and willingness to forge ahead. I cared for a father and an aunt as they declined in dementia (different, of course, because it was more age appropriate and not a life-long concern), and the medical background I have really helped. I'm not a doctor but I have some training in neurology, and I understood brain disease. It made a huge difference, but certainly didn't solve the frustration I felt at not being able to control the situation or the horror I felt at watching relatives (especially my father) become someone different.<br /><br />Whatever you learn, know that we are with you in spirit. And of course, Robert is with you for real, loving you and appreciating you.<br /><br />Judy Stone-Goldman<br />The Reflective Writer<br />http://www.thereflectivewriter.com/blog/<br />"Word maven loves--and learns from--ordinary life"Judy Stone-Goldmanhttp://www.thereflectivewriter.com/blog/noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-4195685512281088982011-06-19T22:10:44.760-07:002011-06-19T22:10:44.760-07:00Thank you, Franziska. I'll be armed with quest...Thank you, Franziska. I'll be armed with questions for the neurologist on Wednesday. It will be good to know how much has changed since his last MRI and what it all means. Will keep you posted.Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-36537465960309922242011-06-19T19:13:53.626-07:002011-06-19T19:13:53.626-07:00You are an incredible sister and Robert is a lucky...You are an incredible sister and Robert is a lucky person to have you in his life! <br /><br />I don't like it either when doctors just throw words at you.. Hopefully, you will get more clarity this week.<br />I will be thinking of you and your brother and hoping you will get answers soon.<br /><br />Franziska San Pedro<br />The Abstract Impressionist ArtressFranziska San Pedrohttps://www.blogger.com/profile/03321842935665484251noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-43742893019852247262011-06-18T21:33:43.893-07:002011-06-18T21:33:43.893-07:00Bccmee, That's so cute that you wished him a h...Bccmee, That's so cute that you wished him a happy birthday so early! Love it! I'd like to think, in 5 years, I'll be following a tremendously talented graphic artist/movie editor to see what great work she's done and you'll still be reading my blog!<br /> :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-48091358717116910992011-06-18T21:31:11.237-07:002011-06-18T21:31:11.237-07:00Thank you, Fiona. The brain is so fascinating to m...Thank you, Fiona. The brain is so fascinating to me (and so resilient). I don't feel so amazing but am amazed that after everything Robert has gone through, he still not only jokes around but prays for other people (although I think one thing he prays for is that I go to church more than once a year!). :-)Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-44963478025994316802011-06-18T21:27:12.923-07:002011-06-18T21:27:12.923-07:00Heidi, Love the cowboy shirt idea! He went throug...Heidi, Love the cowboy shirt idea! He went through a cowboy phase when he was younger so think that would be an easy sell. I enjoyed talking with you too and can't tell you how much your faith in me inspires me!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-65210676560411880922011-06-18T21:23:56.810-07:002011-06-18T21:23:56.810-07:00Joan, I understand that attitude -- I will do what...Joan, I understand that attitude -- I will do what I can to slow his decline (if that's possible) but have to accept what I cannot change. I too hope we are all friends in 5 years and will update everyone on Robert's big 50th bday bash!!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-15151779866167648602011-06-18T21:16:21.117-07:002011-06-18T21:16:21.117-07:00Wednesday does seem like a long way off, Kathy, bu...Wednesday does seem like a long way off, Kathy, but I trust the neurologist and am confident she'll be able to fully explain these results. Heck, for all I know, the results show no change! (If I didn't like my sleep so much, I might still consider med school so I could fully understand all of these med terms). :-) Thinking of your grandsons cute confused faces brings a smile to my face. Thanks, Kathy!Trish Hughes Kreishttps://www.blogger.com/profile/04995070221130924508noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-64622991592416396932011-06-18T17:50:40.893-07:002011-06-18T17:50:40.893-07:00It's so difficult to face the unknown. Like yo...It's so difficult to face the unknown. Like you, I always want answers! Humans are complex systems and there are never simple solutions to whatever ails us.<br /><br />My best wishes to a happy birthday 5 years hence!bccmeehttps://www.blogger.com/profile/15549577176138160033noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-74208042698641885682011-06-18T16:35:55.961-07:002011-06-18T16:35:55.961-07:00I'm like you. I'm not terribly impressed w...I'm like you. I'm not terribly impressed when people start throwing specialised 'big' words around. It would be so much more helpful if they would just slow down and take the time to give a detailed explanation of what they really mean. <br /><br />I can totally understand that you want to know more and have clarity. What is it reasonable to expect. <br /><br />Your brother has been through so much in his life and as you say, there's bound to be a lot of activity going on there anyway. It's just nice to know where you're at.<br /><br />I think you are doing such an amazing job.<br /><br />Fiona Stolze<br />http://fionastolze.comFiona Stolzehttps://www.blogger.com/profile/00343231825594699539noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-65077242504843845242011-06-18T16:35:54.343-07:002011-06-18T16:35:54.343-07:00I've said this before & I'll say it ag...I've said this before & I'll say it again -- Robert is So incredibly fortunate to have a sister like you, Trish! The medical news is hard enough to decipher, but dealing with The Home is equally frustrating.<br /><br />I will definitely keep Robert in my healing mediations & prayers (and you too, of course! you need a lot of stamina to navigate Robert's health and living conditions)<br /><br />I'm so happy we had the chance to chat the other night, Trish, & really look forward to getting together soon! I am even more convinced after chatting with you that you Will change the face of caregiving and help others in your situation.<br /><br />Please update us after the appt. Wednesday. and maybe you should look into shirts with snaps instead of buttons (like those groovy cowboy shirts :) )<br /><br />Heidi & Atticus<br />http://www.atticusuncensored.com<br />"commentary to give you paws..."Heidi Alberti & Atticus Uncensoredhttps://www.blogger.com/profile/05235433621038051444noreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-61912855114508072332011-06-18T13:29:09.319-07:002011-06-18T13:29:09.319-07:00I'm not a religious person but when I get over...I'm not a religious person but when I get overwhelmed I sometimes just throw up my hands and take the attitude of "what will be will be." I see that attitude in your starting to plan Robert's 50th! I hope that you all get to celebrate it in style and that we'll all still be friends, sharing in it via cyberspace!Joan Oliver Emmerhttp://www.joanoliveremmer.comnoreply@blogger.comtag:blogger.com,1999:blog-3821611713908924761.post-63094391336481427432011-06-17T18:04:07.440-07:002011-06-17T18:04:07.440-07:00I just love it when the Dr gives you a big long te...I just love it when the Dr gives you a big long technical word that sounds like gibberish, then looks at you like you know what that is.<br /><br />I wonder if they get the same looks as my grandsons give me when I say something new LOL!<br /><br />Glad you thought to ask for a copy of the MRI results. New Home is indeed a little slow in communication.<br /><br />Wed seems like a long way away. <br />Hopefully you and Robert will have some answers.Kathy Lowreyhttps://www.blogger.com/profile/08866920774643291297noreply@blogger.com